Bleeding Disorders Logic is a medication and specialty care management program for CuraScript patients on therapy for hemophilia and von Willebrand disease. Bleeding Disorders Logic provides additional clinical support and empowers patients with knowledge about their bleeding disorder and how to effectively manage their disease and medication.

Bleeding Disorders Logic services include, but are not limited to:

• Toll-free access to licensed pharmacists for urgent needs 24 hours a day, seven days a week
• Toll-free access to clinical nurses specially trained in hemophilia and other bleeding disorders
• Calls from nurses to discuss your progress and anything that may affect your health, detect any new symptoms or medication side effects and help you take your medicine correctly to receive the greatest benefit from it
• Mailed education materials and access to CuraScript websites that help you manage your condition
• Coordination with Patient Assistance Programs that offer financial help
• Access to on-staff social workers who can provide emotional support and help identify community assistance programs in your area

To learn more about Hemophilia or Von Willebrand disease click here:

• Hemophilia Facts
• Von Willebrand Facts
  

Infusion Logs

The information that you record on your infusion log enables your physician to monitor your treatment and make adjustments as needed, and can help you determine whether certain activities increase your risk for bleeding.

The information you provide in your log should include:

• Date of the infusion
• Factor product you use
• Dose you administered
• Lot number from your factor
• Expiration date
• Reason the factor was prescribed (prophylaxis, treating a bleed, where it was located) 

To print a new infusion log, please click here.

Most private, state and federal insurance carriers now require a copy of this log to confirm that you are using your factor as ordered. Additionally, your infusion log effectively records and tracks your infusion history for your insurance coverage, if requested.

You may reproduce copies for your personal use. You should write down your information on your log each time an infusion is given, and this record should be shared with your physician, pharmacy and insurance carrier, as requested.

Resources for Persons with Bleeding Disorders

Government Agencies

Centers for Disease Control and Prevention
Hematologic Diseases Branch
1600 Clifton Road Atlanta, GA 30333
Ph: 404.639.3311 Public Inquiries Ph: 404.639.3534 Toll-free: 800.311.343

National Institute of Health
National Heart, Lung, and Blood Institute
For all health-related questions and requests for copies of publications, please contact a trained information specialist at the NHLBI Information Center. Include a current postal address, since many resources are available only as printed publications.

NHLBI Health Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
Ph: 301.592 8573 TTY: 240.629.3255 Fx: 301.592.8563

The Americans with Disabilities Act Information Line
Disability Rights Section, Civil Rights Division, US Department of Justice
P.O. Box 66738
Washington, DC 20035-6738
Ph: 800.514.0301 TTY: 800.514.0383
www.ada.gov

Private Agencies and Foundations

American Association of Blood Banks
www.aabb.org

American Society of Hematology
1900 M Street NW, Suite 200
Washington, DC 20036
Ph: 202.776.0544  Fx: 202.776.0545  
www.hematology.org

Hemophilia Federation of America  
102 B Westmark Blvd.  
Lafayette, LA 70506  
Ph: 800.230.9797  Fx: 337.991.0087  
www.hemophiliafed.org

National Organization of Rare Diseases (NORD)
55 Kenosia Avenue, PO Box 1968
Danbury, CT 06813-1968
Ph: 203.744.0100 Toll-free: 800.999.6673
(voice mail only) TDD: 203.797.9590 Fx: 203.798.2291
www.rarediseases.org E-mail: orphan@rarediseases.org

The National Hemophilia Foundation
110 Greene Street, Suite 303
New York, NY 10012
Ph: 800.42.HANDI
www.hemophilia.org

The World Federation of Hemophilia
1425 Rene Levesque Blvd., W.
Montreal, QC H3G177, Canada
Ph: 514.933.7944 Fx: 514.933.8616
www.wfh.org

Gene Therapy Web Sites

Human Genome Project Information
www.ornl.gov/sci/techresources/Human_Genome/Home.shtml

National Human Genome Research Institute
www.genome.gov

National Library of Medicine, National Institutes of Health
www.nlm.nih.gov/medlineplus/genesandgenetherapy.html

NIH Office of Biotechnology Activities (OBA)
www4.od.nih.gov/oba/